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Impact of the EU’s General Data Protection Regulation on health data and health research in Europe

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Friday, 3 March 2017, 09h00 – 12h30
Merrion Hotel, Dublin (Merrion Street Upper, Dublin 2, Ireland)

ISC will organize a seminar on 3rd March 2017 in Dublin which will examine the EU’s General Data Protection Regulation (GDPR) and its potential impacts on the use of personal and sensitive data for health and related research.


The GDPR entered into force on 24 May 2016 and will apply from 25 May 2018. The regulation is aimed at empowering the citizens as data subjects, as well as establishing legal certainty for business and organizations based on clear and uniform rules. The GDPR will apply to all organizations in and outside the EU that deal with the personal data of EU individuals. Science-based and research organizations will need to take advantage of transition period up to 25 May 2018 to prepare for a significant increase in their data protection responsibilities and advance their privacy compliance programmes.



The seminar will examine how the GDPR will determine and affect the use of personal data, which will have a higher standard of protection. The seminar, comprising presentations and panel discussions by experts and policy-makers, will aim to envisage this new environment for regulated personal data by examining how it will impact research and technology based organizations and their ongoing and future data-enabled scientific collaborations within the EU and with other countries. Specifically, the seminar will focus on the health-related personal data and discuss whether the GDPR will help or hinder the advancement of health research and its outcomes. The global perspective of collaborative R&D in the framework of the new data protection landscape will also be explored. 


The participatoin is free of charge.


To participate in the seminar, please register through the form below.


Draft Agenda:


09H00             Introduction

Declan Kirrane, ISC

09H05             Welcome remarks

James Lawless TD, Fianna Fáil Spokesperson for Science, Technology, Research & Development 


09H15             Scene setting

                            Kurt Zatloukal, Medical University of Graz

Jeanne Kelly, Partner, Mason Hayes & Curran

Cathal Ryan, Head, Public Sector and Health Office of the Data Protection Commissioner, Ireland

David Byrne, Former European Commissioner for Health and Consumer Protection

Triona McCormack, Director of Research, UCD

10H00             Processing personal data under the GDPR


Tjaša Petročnik, ISC

Brain Quinn, INTEL 

Graham Love, Chief Executive, Health Research Board, Ireland

Fionnán Friel, Odysssey Validation Compliance




10H30             GDPR: the impacts for health R&D and data for health


Martin Curley, Digital Practice, MasterCard

Tim Lynch, Consultant Neurologist, Dublin Neurological Institute

Walter Kolch, Systems Biology Ireland & Conway Institute, UCD

David Harmon, Huawei Technologies, China




11H10             Coffee break


11H25             GDPR Code of Conduct for health data


Kurt Zatloukal, Medical University of Graz

Pat Moran, Partner, PwC

Invited Speaker, IDA



12H30             Conclusions


Emer Costello




For further information, please contact:

Declan Kirrane, ISC
Email: declan.kirrane@iscintelligence.com
Tel: + 32 494 34 60 40


Tjaša Petročnik, Policy Analyst, ISC
Email: tjasa.petrocnik@iscintelligence.com
Tel: +32 2 880 36 24



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