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Impact of the EU’s General Data Protection Regulation on health data and health research in Europe

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Friday, 3 March 2017, 09h00 – 12h30
Merrion Hotel, Dublin (Merrion Street Upper, Dublin 2, Ireland)

ISC organized a seminar on 3rd March 2017 in Dublin which examined the EU’s General Data Protection Regulation (GDPR) and its potential impacts on the use of personal and sensitive data for health and related research.


The GDPR entered into force on 24 May 2016 and will apply from 25 May 2018. The regulation is aimed at empowering the citizens as data subjects, as well as establishing legal certainty for business and organizations based on clear and uniform rules. The GDPR will apply to all organizations in and outside the EU that deal with the personal data of EU individuals. Science-based and research organizations will need to take advantage of transition period up to 25 May 2018 to prepare for a significant increase in their data protection responsibilities and advance their privacy compliance programmes.



The seminar explored how the GDPR will determine and affect the use of personal data, which will have a higher standard of protection. The seminar, comprising presentations and panel discussions by experts and policy-makers, aimed to envisage this new environment for regulated personal data by examining how it will impact research and technology based organizations and their ongoing and future data-enabled scientific collaborations within the EU and with other countries. Specifically, the seminar focused on the health-related personal data and discuss whether the GDPR will help or hinder the advancement of health research and its outcomes. The global perspective of collaborative R&D in the framework of the new data protection landscape was also taken into account. 


Final agenda and speakers' bios are available in the attached files below.



For further information, please contact:

Declan Kirrane, ISC
Email: declan.kirrane@iscintelligence.com
Tel: + 32 494 34 60 40


Tjaša Petročnik, Policy Analyst, ISC
Email: tjasa.petrocnik@iscintelligence.com
Tel: +32 2 880 36 24